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Deafblindness

Fact Sheet

Information Provided by "Sense" Deafblind Organization

http://www.sense.org.uk/deafblindness/

Deafblindness (or dual-sensory-impairment) is an unique disability which brings enormous challenges to the individual and those who support them.

Deafblindness has many causes. It affects people of all ages in different ways, and no two deafblind people are the same.

Many people will not be totally deaf and totally blind but will have some remaining use of one or both senses. Others will also have additional physical and/or learning disabilities as well.

Causes of Deafblindness

Deafblindness has many causes and the challenge it brings are often more than just a combination of visual and hearing impairments.

Acquired or congenital

When someone is born with combined sight and hearing difficulties this is called congenital deafblindness. Examples of this includes conditions such as Rubella or CHARGE.

If they develop these problems later in life, this is called acquired deafblindness. This may be due to a accident, illness or as a result of aging in later life..

In some cases, people may be born with a genetic condition such as Usher Syndrome, which may mean that they progressively lose their sight and hearing.

Communication

People who are deafblind use many different methods of communication. The method chosen will depend upon the amount of residual sight and hearing remaining, the cause of deafblindness and how long the person has had a sensory impairment.
Of course, some deafblind people use a combination of methods to communicate.

PACER Center
Parent Advocacy Coalition for Educational Rights

The following links are from the PACER Center Web site at

http://www.pacer.org/links/national/disability.htm

Deafblind

  • American Association of the Deaf Blind
    www.aadb.org
    814 Thayer Ave. #302, Silver Spring, MD 20910-4500, 800-735-2258, TTY 301-588-6545, fax 301-588-8705
  • Helen Keller National Center for Deaf-Blind Youths & Adults, Technical Assistance Center
    www.helenkeller.org/national/
    111 Middle Neck Road, Sands Point, NY 11050, 516-944-8900, TTY 516-944-8637, fax 516-944-7302
  • National Center on Low Incidence Disabilities
    www.nclid.unco.edu
    University of Northern Colorado, Campus Box 146, Greeley, CO 80639, 800-395-2693 v/TTY
  • National Coalition on Deaf-Blindness
    175 North Beacon St., Watertown, MA 02472, 617-972-7347 v/TTY, fax 617-923-8076
  • National Family Association for Deaf-Blind
    www.NFADB.org
    111 Middle Neck Rd, Sands Point, NY 11050, 800-255-0411 ext 275, fax 516-944-5984
  • The National Information Clearinghouse on Children Who Are Deaf-Blind DB Link
    www.tr.wou.edu/dblink/index.htm
    Teaching Research, 345 N Monmouth Ave, Monmouth, OR 97361, 800-438-9376, TTY 800-854-7013